Thursday, 21 January 2010
One of the things I really hoped to do with this blog was to include the perspectives of other members of the international Pompe community. I am therefore delighted to say that I now have a number of contributions that I will be posting to the blog. I to begin with I have contributions from Tiffany House (of the AMDA and IPA) and Maryze Schoneveld van der Linde (of the VSN and IPA). Both people with stories to tell and who were (and are) in a good position to observe events. I thank them both for their excellent contributions and encourage others to contribute their own.